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I Fear For My Son’s Future Living With Kidney Disease – Kidney Research UK – Renal.PlatoHealth.ai

A difficult pregnancy

Haley’s pregnancy with Jenson was a very different experience to that with her first child. Before he was born, Jenson was diagnosed with a multi-cystic dysplastic kidney, and Haley required weekly scans to monitor his growth and blood flow. 

Haley says: “This was a scary time as we hadn’t ever heard of this condition before. It was really worrying. Due to the complexities, we weren’t sure what would happen when he was born.” 

Doctors recommended an induced birth to avoid going beyond the due date, and Jenson was born in September 2019. Haley says: “Straight after he was born, the worry set in for us and the what ifs. However, he was able to urinate after six hours, and the doctors’ concern became less urgent. We were discharged and told we would be brought back for a scan to assess his situation further.” 

Jenson required antibiotics to prevent infection, and after two weeks he had a DMSA (dimercaptosuccinic acid) scan and an ultrasound to check his kidney function. Doctors confirmed that Jenson’s right kidney was not functioning at all, and he was referred to a paediatrician and a nephrologist for quarterly check-ups.