Jeff Boothman is a T-cell lymphoma survivor, leadership and operations expert, coach, and author. He holds an undergraduate degree in finance and accounting, a master’s degree in operations, and is a certified Six Sigma Black Belt. In his book, How To Be A Cancer Patient, he hopes to share his life-saving advice with anyone and everyone who needs it, from people with cancer to health care professionals. Jeff lives near Columbus, Ohio, on 7 acres, where he loves to spend time with his wife, 3 kids, and 2 dogs.
On a cold fall day, the day before Thanksgiving, I finally received my cancer diagnosis. The doctor confirmed, “You have T-cell lymphoma. We will start chemo in a few weeks.”
Of course, immediately after I heard my diagnosis, I lost my focus and, in many ways, even my ability to focus. After talking with hundreds of other people with cancer, it seems that this happens quite often.
At the time, I really had no idea what adventure awaited me. It was a crazy experience and very stressful. Knowing what I know now, if I could go back in time and walk into the room right as I was being told I had cancer, here is what I would have told myself to reduce the stress of treatment.
1: Know your treatment plan.
Surprises or unknown steps in the treatment process added a lot of stress for me. For instance, during my first day of inpatient chemotherapy, I was scheduled for several procedures I had no idea were coming: a heart sonogram, a peripherally inserted central catheter (PICC) line insertion, and a bone marrow check. As each of these items were “added” to my day, my stress increased.
Looking back, I did not do a great job of asking for the exact details of what would be involved with my treatment plan. I thought starting chemotherapy meant being hooked up to an intravenous (IV) line as soon as I arrived at the hospital. In reality, I had a day of tests and needed a PICC line before I even got to start the treatment.
My advice for others who have been newly diagnosed with cancer is to ask about and know every step in your treatment plan, even hour by hour, before you start. It eliminates surprises and the stress that can come with treatment.
2: Advocate for yourself.
As I was progressing through my surgeries, chemotherapy, and radiation treatments, I would find that there was often some flexibility in the treatment plan itself. For instance, I found out that there were newer magnetic resonance imaging (MRI) machines I could use for scans that were much larger and less stressful for me than older models. I also learned that my chemotherapy time could be slightly reduced so I could make a once-in-a-lifetime event with one of my kids. And, when in the hospital, I found that there are almost always ways to make your room darker so sleep is easier.
While talking to members of my care team, I would ask about my options or discuss my stress level to see if there was anything that could be done to make the treatments more comfortable. Oftentimes, there was. But I first had to take the time to sort out what parts of treatment, in particular, were creating stress for me, and then ask about whether other options were available. Sometimes, there weren’t other options, but many times there were. I learned that it was my job to ask the questions and find out. If a part of your treatment is uncomfortable for you, ask if there are options to make it easier or less stressful.
3: Be ready for side effects and complications.
One of the other things that added a lot of stress to my treatment were the side effects and complications I experienced, including needing a blood transfusion, experiencing constipation, and having awful back pain, to name just a few. Sometimes, I was told about the possibility of the issues. Other times, I was not.
Oftentimes, when I was discussing treatment with my doctor, I focused on what was supposed to happen if things went right. But I learned that when discussing treatment, you really need to figure out what could go wrong, too. It’s not entirely natural to look for more problems when you are already sick, but for me, I found it was an important tactic to reducing stress. Knowing all the possible “bad” things that could come along with a treatment allows you to decide how you will respond before the complications or side effects show up. I found that putting a plan into place before experiencing complications is much easier than trying to create one after the side effects have already arrived. It’s also much less stressful.
If you are getting ready to start treatment, my advice would be to ask about all of the side effects and complications that could occur with any treatment in your recommended treatment plan. Then, decide with your health care team how you will deal with them before you even start the treatment.
Being diagnosed with cancer and going through treatment can be difficult. But by putting in the effort to work on the 3 things I outlined above, I found that it is 100% possible to reduce the stresses that arise during cancer treatment.
The author has no relevant relationships to disclose.